Coming together in Amsterdam
The Alliance’s Executive committee and other leaders from MS organisations around the world came together in Amsterdam for an exciting few days, sharing progress and building on continued global collaboration.
During MS International Federation’s Global Networking Meetings in April, hosted by Stichting MS Research, delegates visited a world-leading and innovative care centre, Nieuw Unicum, which supports over 140 people with advanced progressive MS.
Queen Máxima of the Netherlands joined delegates at the centre for an inspiring afternoon, hearing about the International Progressive MS Alliance, and developments into progressive MS facilities and research. The Alliance’s Executive Committee chair, Cyndi Zagieboylo, spoke of the progress made by the Alliance over the past year and the path ahead.
A speech therapy specialist presented research into diagnosing and treating swallowing problems in people with MS and an MS nurse spoke of the centre’s innovative online coaching programme that offers support to people with MS in their own homes.
There was also a lively panel discussion that explored rehabilitation and palliative care, respite services and residential care in a range of contexts, including India, the US and Denmark.
From discussing the Alliance’s progress to learning about facilities and research that are transforming the landscape of progressive MS, it was an inspiring few days bringing together the global MS movement.
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