MS organisations

MS organisations are encouraged to join the Progressive MS Alliance. The strength of the Alliance is in the unity and shared focus of its members and the engagement of the wider MS community, so every new member makes the Alliance stronger.

There are various ways for an MS organisation to join the MS Alliance, which take into account the different ways and levels organisations feel able to participate.

Managing members

Managing members are non-profit patient advocacy organizations dedicated to

  • promoting and delivering services to people with MS at the national and local level
  • representing and affirming the rights of people with MS
  • supporting and promoting scientific research relevant to MS.

Managing members desire to promote research efforts and create a platform for engagement to address the needs of people with progressive MS internationally.

Managing members are voting members on the Executive Committee.

Managing members are represented by chief executives of MS societies that commit at any time:

  • funds of at least €765,000 over three years with €200,000 in year one
  • professional scientific staff to support the Alliance
  • their ability to fund international research, wherever it is based, that is recommended by the Scientific Steering Committee and approved by the Executive Committee.

The chief executive of MSIF is a voting member of the Executive Committee without having to meet the criteria above.

Each member has an equal vote and the Chair has an extra vote in the event of a tie. However, best efforts are made to reach consensus.

The scope of the relationship between the managing members follows these agreed purposes:

• The Alliance should support research addressing progressive forms of MS
• The coordination of efforts and the efficient use of resources is the best way to achieve advances for people with progressive MS
• The Alliance is essential to make progress in researching progressive MS in a manner and on a basis that could not be achieved by each party working in isolation
• Pursuing research, communications and fundraising collaborations together will provide an enhanced capacity to further develop or promote research relating to progressive MS.

MS society members

Members that contribute resources and financially but do not meet the requirements identified for managing members receive benefits of membership.

MS societies contributing €361,795 or more:

  • Attend quarterly Executive Committee meetings, represented by their chief executive or designee, without voting rights. The Executive Committee may meet more frequently than quarterly to address operational issues without including these member chief executives or designees.
  • Nominate a qualified volunteer to serve on the Alliance’s Scientific Steering Committee
  • Receive recognition as a member on the Alliance’s website and marketing materials
  • Have access to all grant status reports, results and other deliverables from Alliance funded research projects
  • Receive the Alliance’s fundraising plan and communication materials
  • Request Alliance participation in meetings with the society’s scientific organizational bodies.
  • Have access to the Alliance’s budget materials and all corresponding financial reconciliations
  • Have access to grant agreements provided to Alliance awardees
  • Receive periodic updates on the activities and progress of the Alliance
  • Have the opportunity to participate in an annual in-person meeting convened by the Alliance
  • Take part in fundraising training and guidance related to the Alliance
  • Abide by communications guidelines developed by the Alliance regarding logo usage and other assets
  • Honor and respect the confidentiality and copyrights of such designated materials
  • Must be willing to fund international research, wherever it is based, that is recommended by the Scientific Steering Committee and approved by the Executive Committee.

MS societies contributing less than $361,795

  • Attend quarterly Executive Committee of the Alliance meetings, represented by their chief executive or designee, without voting rights. The Executive Committee may meet more frequently than quarterly to address operational issues without including Members.
  • Receive recognition as a member on the Alliance’s website and marketing materials
  • Have access to all grant status reports, results and other deliverables from Alliance funded research projects; receive the Alliance’s fundraising plan and communication materials
  • Have access to the Alliance’s budget materials and all corresponding financial reconciliations
  • Have access to grant agreements provided to Alliance awardees
  • Receive periodic updates on the activities and progress of the Alliance
  • Have the opportunity to take part in an annual in-person meeting convened by the Alliance
  • Take part in fundraising training and guidance related to the Alliance
  • Abide by communications guidelines developed by the Alliance regarding logo usage and other assets
  • Honor and respect the confidentiality and copyrights of such designated materials
  • Must be willing to fund international research, wherever it is based, that is recommended by the Scientific Steering Committee and approved by the Executive Committee.

Please fill in the form below if you are interested in joining the Progressive MS Alliance.

 

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